Volunteering with the Kosair Charities Center for Pediatric NeuroRecovery is a unique opportunity to donate valuable time to children with spinal cord injury. Individuals interested in a healthcare career may gain insight into rehabilitation and, in particular, working with children. In addition, you will learn about new rehab and cutting-edge rehab approaches. You will absolutely gain satisfaction in knowing that you are positively affecting children’s lives.
Individuals may volunteer in our clinic to assist in locomotor training sessions. Volunteer responsibilities include:
- Preparing for the locomotor training session
- Assisting and encouraging the child’s participation as directed
- Videotaping the session
- Maintaining the treatment area
- Readying for the next child
Orientation to the hospital and the pediatric locomotor training clinic are required of all volunteers.
For more information about how to volunteer with the Kosair Charities Center for Pediatric NeuroRecovery, contact us: firstname.lastname@example.org.
If you would like to partner with us by financially supporting our work to advance recovery for children, please see the “Donate Now” button on this page. To donate funds specifically for the Pediatric NeuroRecovery program, please select that option at the bottom of the donate form. Thanks very much for your support on behalf of the children and families that we serve.Donate Now
SPONSOR A CHILD
The Todd Crawford Foundation is partnering with us by supporting Crawford Kids, a fund that provides additional financial help for families for their child’s participation in annual follow-up research evaluations and to booster locomotor training sessions. You can help sponsor a Crawford Kid with your donation to the Todd Crawford Foundation. Please visit the Todd Crawford Foundation for more information about giving to this fund.
Luke Adams—the first Crawford Kid
Luke was a normally developing baby until the age of 5 months when he acquired transverse myelitis, a disorder that leads to inflammation of the spinal cord. For Luke, the disorder left him paralyzed overnight, affecting his arms, hands, trunk, and legs. His family was told that he would not be able to walk and would require a wheelchair for mobility. However, Luke’s Mom would not take “unable” as an outcome. She was determined to do whatever it took to get Luke upright and walking. When she heard about the Kids STEP Study being performed at the University of Florida, she knew she had to get Luke involved. They waited over a year to participate due to Luke’s young age, but as soon as he was old enough, he was enrolled.
Luke participated in the Kids STEP Study, led by Dr. Andrea Behrman and Dr. Dena Howland, for over a year with continuing improvements. He was non-ambulatory since 5 months of age and had never taken a step when he entered the Kids STEP Study and began locomotor training at age 3.5 years. He is now able to independently initiate and take steps with a reverse rolling walker. “Unable” is now “able” and Luke continues to show improvement in both trunk control and walking. Luke can also sit on his own and does not require a brace or arm support to sit independently.
Luke first “became” a baseball player during locomotor training. He learned to swing a baseball bat while on the treadmill during “stand adaptability training”. He hit a pitched ball and ran the bases during “over ground therapy”. Today he is playing baseball with his brother, Blake-what we therapeutically call “community integration”. Luke continues to show improvement with the tremendous support of his family.
When Dr. Behrman, Dr. Howland, and Shelley Trimble (Pediatric Research PT) moved from the University of Florida to the University of Louisville and the Kentucky Spinal Cord Injury Research Center, Luke’s family sought to develop resources for children in Florida to receive locomotor training and activity-based therapies (www.lukesway.org). His family has remained in touch with Drs. Behrman and Howland and Shelley, and Luke even traveled to Louisville in 2013 to participate in the Kentucky Mini-Marathon. He was one of over 20 participants with SCI who walked in the race to raise funds for the Christopher and Dana Reeve Foundation NeuroRecovery Network and assist others to receive locomotor training.
In the summer of 2014 at the age of 7, Luke returned as a research participant with the Kentucky Spinal Cord Injury Research Center and the University of Louisville Kosair Charities Center for Pediatric NeuroRecovery; led by Drs. Behrman and Howland. The Todd Crawford Foundation (TCF) raises funds to support SCI research and through these funds, Luke was supported as the first “Crawford Kid”.
Luke has paved the way for other children to recover because of his progress in locomotor training, his fund-raising efforts to help other children, and helping us again this year as a research participant to discover and learn how to best advance recovery for children with spinal cord injuries.
SUPPORT THE ANNUAL WALK-A-THON
Walk to Victory! This 24-hour step-a-thon raises funds annually for the Locomotor Training Program at Frazier Rehab Institute and The Christopher and Dana Reeve Foundation’s NeuroRecovery Network. Starting at 9 a.m. on a Saturday, current and former patients and their families and friends walk on treadmills in our Locomotor Training Clinic for 24 straight hours! Each walker is raising funds to bring greater access to new, activity-based therapies for more patients with spinal cord injury, and everyone has a story to tell. Stay tuned for further information about this exciting event!
Our equipment needs vary from purchasing a new interactive video game for use during training to buying a new body weight support treadmill system. Your dollars assist in every possible way to provide equipment for clinical purposes and to advance our research capabilities.
DONATE TO OUR PARTNERS
Many organizations assist us in our mission. You may want to consider donating time and/or funds to any of our partners.
Kosair Charities is funding the Kosair Charities Center for Pediatric NeuroRecovery at the University of Louisville. The Center provides a hub to 1) deliver state-of-the-art activity-based therapies to affected children with neurological disorders to promote recovery and enhance their quality of life, 2) train therapists, physicians and researchers, and 3) conduct ground-breaking research to provide the foundation for clinical decision-making, refinement, and development of novel therapies to promote neuromuscular recovery and achievement of developmentally-appropriate skills in children.
Walk to Victory! This 24-hour step-a-thon raises funds annually for the Locomotor Training Program at Frazier Rehab Institute and The Christopher and Dana Reeve Foundation’s NeuroRecovery Network. Starting at 9 a.m. on a Saturday, current and former patients and their family and friends walk on treadmills in our Locomotor Training Clinic for 24 straight hours! Each walker is fundraising to bring greater access to new, activity-based therapies for more patients with spinal cord injury, and everyone has a story to tell. Stay tuned for further information about this exciting event!
The purpose of the Todd Crawford Foundation (TCF) is to raise money and awareness for spinal cord injury (SCI) research. TCF supports Crawford Kids [we could link this to Luke’s profile who is the first Crawford Kid and/or Ways to Help – Sponsor a Child], a fund that provides additional financial help for families for their child’s participation in annual follow-up research evaluations and to booster Locomotor Training sessions. TCF also funds Crawford Scholars, Physical Therapy, Medical, graduate and undergraduate students, who are supported with research fellowships in the Pediatric NeuroRecovery Laboratory.
The mission of the Ronald McDonald House (RMH) Charities of Kentuckiana is to provide a “home away from home” for families of children receiving healthcare at area medical facilities while also lending support to other organizations who aid children. Children enrolled in Pediatric NeuroRecovery and their families benefit from the proximity of RMH to our facility and the basic, yet comforting, daily services that RMH provides year round. For housing information see here.
The WHAS Crusade for Children improves the futures of children with special needs by inspiring people to give and awarding grants, so that all children with special needs have the opportunity to fulfill their potential. The Crusade supports the Pediatric NeuroRecovery Program through the purchase of pediatric-specific equipment for Locomotor Training and scholarships to support therapy sessions for children in need.