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Pediatrics: Things to Know »

SCREEN FOR SERVICES

Our thorough medical and rehabilitation screen for the child, conducted with the parents, review of medical and rehabilitation history, and understanding the family’s goals allows us to first establish whether our services are appropriate for your child. You may be asked to provide relevant medical records, test results, and physician contact information.

IF OUR SERVICES MATCH YOUR NEEDS

If our services match your child’s needs, insurance verification is conducted by our staff at Frazier Rehab Institute. This process varies in length from days to several weeks depending upon the provider.

With successful approval, an optimal time for participation in locomotor training is discussed and a target date proposed. Many factors contribute to the decision of “when” to participate, such as whether your child is school age, availability for participation, need for housing, and staff resources.

Our Nurse Navigator will facilitate your preparation to enroll in Pediatric NeuroRecovery services and locomotor training program. If you are coming from out-of-town, -state or -country, the Nurse Navigator will assist you with plans to transition to Louisville. The Nurse Navigator serves as your point person for questions and services throughout your child’s stay and for continued follow-up evaluations and services during your child’s recovery throughout childhood and adolescence.

HOUSING OPTIONS

Ronald McDonald House LogoThe Kosair Charities Center for Pediatric NeuroRecovery works closely with the Ronald McDonald House Charities of Kentuckiana to provide housing for children and their families who participate in our program. The Ronald McDonald House (RMH) at 550 South First Street, Louisville, KY, is only two blocks from Frazier Rehab Institute, 220 Abraham Flexner Way, Louisville, KY, where our program is located. There are often other families in our program staying at RMH which may lead to new friends and shared experiences.

If you decide that the Ronald McDonald House best meets your lodging needs4. Summer Kids group-RMH while in Louisville, we will gather some information from you and make a referral to the Ronald McDonald House no more than four days before your arrival. This is not a reservation, but a position on the waiting list. You must call on the day of your arrival to determine if there is availability. In most circumstances, there are accommodations available, however, if not, RMH will help you locate a hotel with a discounted rate. This flyer provides more information about securing a room and staying at RMH.

If families choose not to stay at the Ronald McDonald House, our Nurse Navigator can refer you to other housing options.

Brown FamilyWHAT TO BRING

Past medical history

  • Recent pediatrician records
  • Rehabilitation records
  • MRI
  • Recent x-rays and reports of spine and hips

What should my child wear to Locomotor Training?

  • Shorts that come at least to mid-thigh (no short shorts please)
  • Stretch or lycra shorts are preferred.
  • Socks and well-fitting sneakers (no high tops or thick soles please)
  • Shoes must fit without braces inserted in them.
  • T-shirts with short sleeves and covering midriff
  • Long hair should be tied back and out of child’s face
  • Because Locomotor Training focuses on turning muscles “on” versus turning them “off” by supporting them, we do not use braces during training or otherwise.

You are encouraged to bring training clothes to therapy. You may bring any extra supplies with you as well. We will provide storage for such items.

UPON ARRIVAL

Parking

Parking is available at Frazier Rehab Institute and Jewish Hospital with Kentucky One Health. You also may valet park your car by entering the patient drop off and pick up drive-through next to Frazier Rehab Institute. Directions available here.

In addition, there are limited handicapped parking spaces in front of Frazier Rehab Institute on Abraham Flexner Way for a maximum time of three hours.

Walking from Ronald McDonald House (RMH)

Turn left outside the back entrance to the RMH (ramp) onto Chestnut Street. Walk half a block and cross over First Street, then walk a second block and cross over Brook Street. You have two options for entering the building. Walk past the MRI facility and take the immediate left under the covered walkway to the Jewish Hospital entrance. Enter and turn immediately right, walk straight ahead until a “T”, turn left and follow the hallway until you arrive at the Frazier Rehab Institute Lobby. An information desk is ahead on the left. Turn left just before the desk to access the six elevators. This is a good path during inclement weather.

map-outside walkOr after crossing Brook Street, turn left and walk approximately one block to Abraham Flexner Way. Turn right and walk half a block until you arrive at Frazier Rehab Institute on the right. Take the ramp on the right up to the entrance. As you enter the lobby, walk past the information desk on the right, and turn immediate right to access the set of six elevators. (click map to enlarge)

First Day

We will meet you in the lobby at Frazier Rehab at your scheduled appointment time. We will escort you to the 11th floor for registration at out-patient spinal cord medicine program. After arriving at the 11th floor, walk thru the double doors (using a hand wave over the black plate on the right hand wall to activate the automatic door opener). Then take an immediate left down the hallway and the registration desk is on the left at the end of the hallway.

If you have any questions, please contact us at the number provided in the materials sent to you.

At registration, you will need identification and your insurance information. You will need to check in for our out-patient services here daily prior to your appointment. Please allow plenty of time to check in, so that your child will arrive promptly at the appointed therapy time.

First Appointment

Your child’s first appointment is with a physician who specializes in working with people with spinal cord injury. The doctor will examine your child, discuss relevant medical history and rehabilitation goals. This is the final medical clearance before beginning locomotor training. The doctor confirms that your child is appropriate for participation in locomotor training. After medical approval, the doctor provides a prescription for locomotor training.

Eighth Floor Ronald MacDonald House Family Room (Room 804)

A Family Room is available on the 8th floor of Frazier Rehab Institute especially for families. The room has a small refrigerator, coffee, TV, Wi-Fi, a restroom, lounge chairs and a dining table for meals. You are welcome to wait for your child here during the locomotor training session or use this room at other times. Children must be accompanied by an adult.

Larosa Lounge

The Larosa Lounge also is on the 8th floor of Frazier Rehab Institute. This room has many resources for children and their families including books, arts and crafts, and games that are available for use in the Larosa Lounge. Children must be accompanied by an adult.

Where can we eat?

The Jewish Hospital Chestnut Café is located on the ground floor. From the Frazier Lobby (Abraham Flexner entrance) walk past the information desk and the elevators down a hallway, then turn right and enter the cafeteria seating area. You will need to walk through this area to get to the cafeteria. There are many dining options including a sandwich deli, complete meals, pizza, and hamburgers to order, salad bar, pre-packaged salads and sandwiches, soups, and a variety of beverages.

In addition, the Wall Street Deli is housed in the Medical Center building. Go out the exit to Abraham Flexner Way, cross the street, and enter the Medical Center building, just on the right of the circle. The Deli is immediately in front of you. The Deli specializes in sandwiches, salads, and soups.

A Starbucks coffee shop is available in Jewish Hospital ground floor. Enter the hospital via the entrance on Abraham Flexner Way—the Starbucks is located in the lobby—or via the entrance on Chestnut Street and walk straight ahead down the hallway (past the cafeteria and elevators). Take the first hallway to the right and Starbucks is straight ahead.

WHAT TO EXPECT

Our Approach to Child Guidance

7. ArgieandESM_chldgdnWhile participating in activity-based therapy sessions, our staff uses a positive approach to guiding children’s behavior. We develop respectful and caring relationships with each child in order to build a strong sense of trust. We believe that positive, supportive guidance strategies also create a sense of belonging and increase children’s confidence in social situations and ability to control emotions.

Here are strategies that we use in training sessions:

  • Encourage children to verbalize needs and wants in appropriate ways
  • Give individual attention to the child
  • Give specific feedback so children know what is expected
  • Use positive language that focuses on expected behavior
  • Ignore inappropriate behavior and redirect to appropriate behavior
  • Model appropriate language and behaviors
  • Focus on children’s interests and offer choices
  • Respond consistently to the child and ensure consistency among all staff
  • Engage children in meaningful play activities to achieve therapeutic goals

First Week Schedule

We will provide you with a schedule of appointments for your first week. Your first day, you and your child will see the physician who specializes in working with people with spinal cord injury. After medical approval to participate in locomotor training, your child will have an initial evaluation scheduled. If you are from out-of-the-area, you will have an appointment with a local pediatrician working with our program in case any health issues arise during your child’s stay.

What if my child is sick?

Your child should not attend therapy, if she/he has fever or vomiting within the past 24 hours. Please call our Out-Patient Office Coordinator, 502-582-7495 and let her know your child is sick.

What important information should I share about my child to make Locomotor Training successful?

  • Notify us whenever your child is sick and provide the symptoms
  • Notify us if there is skin breakdown on any part of the body
  • Notify us if there are any changes in bowel and bladder function
  • Notify us if any changes in sensation are observed by you or reported by your child
  • Notify us if you notice changes in your child’s sleeping patterns
  • Notify us about any changes in motor activity below the spinal cord injury level

How will I learn about my child’s progress in locomotor training and how can I promote recovery at home?

ECO-2013_Swordfight_YESSpecial time will be available for you to observe and ask questions during each session. Weekly meetings will be held to discuss progress and any concerns.

Our goal is to achieve an environment that will keep your child engaged at all times. Distractions will be minimized and discouraged. Please remember that the Ronald McDonald Family Room is available for your use.

OUR COMMUNITY

ECO its possible here - FBLouisville, nestled on the Ohio River, is located near the middle of the United States in the commonwealth of Kentucky. It is a city built upon Northern ingenuity and Southern charm, which means we are business savvy and very friendly! It is a mix of old and new with the largest historical preservation district of Victorian homes and buildings in the country and modern skyscrapers interspersed with older buildings downtown. Louisville is home to three of Kentucky’s six Fortune 500 companies and the only first-class designated city in Kentucky. We claim the Kentucky Derby, Kentucky Fried Chicken, Louisville Slugger baseball bats, the Hot Brown, and the University of Louisville and its famed Cardinal Bird.

Louisville consists of a variety of urban neighborhoods, many of which have been revitalized over the past two decades, providing appealing local eateries, shops, cultural events, and friendly folks. Popular areas include Bardstown Road, Baxter Avenue, and Frankfort Avenue corridors; Old Louisville; the Highlands, and East Market Street—referred to as NuLu. In addition, our downtown area includes many interesting museums and galleries as well as Louisville Slugger Field, Waterfront Park and Fourth Street Live!

Because Louisville is situated in the Ohio River Valley it has a humid subtropical climate with four distinct seasons. The mean annual temperature is 58.2 °F with an average annual snowfall of 12.7 inches and an average annual rainfall of 44.9 inches.

ABR-UoLCard with correct L croppedRecently, Louisville has emerged as a major center for the health care and medical sciences industries. It is best known for advances in heart, hand surgery and cancer treatment. Louisville’s downtown medical research campus includes a new multi-million dollar rehabilitation center and health sciences research and commercialization park, which has recruited many renowned scientists and researchers. In fact, our own scientists, researchers, and clinicians at the Kosair Charities Center for Pediatric NeuroRecovery have been recruited through this initiative.

We are proud to say that Louisville has 127 city parks covering more than 13,000 acres with several designed by Frederick Law Olmsted, who also designed New York’s Central Park. The Big Four Bridge, located in Waterfront Park, is a pedestrian bridge connecting Louisville’s waterfront to Jeffersonville, Indiana’s waterfront. In addition to many city parks, parks outside the city such as The Parklands of Floyds Fork, Bernheim Arboretum and Research Forest, Otter Creek Outdoor Recreation Area, and Falls of the Ohio State Park are places to be explored and cherished.

Louisville is a unique hub of interesting places, people, food, architecture, cultural events, and world-class innovations. Please enjoy all our community has to offer. Children, who have been enrolled in our locomotor training program, and their families, have identified many places of interest to them.

THINGS KIDS LOVE TO DO IN LOUISVILLE

9. ThingsKidsSluggerLouisville is an historic city on the Ohio River with a variety of ethnic neighborhoods and lovely city parks. There are many exciting places to visit in and around the city. Here is a list of sites and attractions that families who participate in our program especially like and have shared with us. Links to websites are provided below for more information. Upon arrival and in your welcome packet your child and family also will receive a poster identifying some of these attractions.

9. ThingsKidsWalkingBridge

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