Past medical history
- Recent pediatrician records
- Rehabilitation records
- MRI
- Recent x-rays and reports of spine and hips
- Shorts that come at least to mid-thigh (no short shorts please)
- Stretch or lycra shorts are preferred.
- Socks and well-fitting sneakers (no high tops or thick soles please)
- Shoes must fit without braces inserted in them.
- T-shirts with short sleeves and covering midriff
- Long hair should be tied back and out of child’s face
- Because Locomotor Training focuses on turning muscles “on” versus turning them “off” by supporting them, we do not use braces during training or otherwise.
You are encouraged to bring training clothes to therapy. You may bring any extra supplies with you as well. We will provide storage for such items.
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The Jewish Hospital Chestnut Café is located on the ground floor. From the Frazier Lobby (Abraham Flexner entrance) walk past the information desk and the elevators down a hallway, then turn right and enter the cafeteria seating area. You will need to walk through this area to get to the cafeteria. There are many dining options including a sandwich deli, complete meals, pizza, and hamburgers to order, salad bar, pre-packaged salads and sandwiches, soups, and a variety of beverages.
In addition, the Wall Street Deli is housed in the Medical Center building. Go out the exit to Abraham Flexner Way, cross the street, and enter the Medical Center building, just on the right of the circle. The Deli is immediately in front of you. The Deli specializes in sandwiches, salads, and soups.
A Starbucks coffee shop is available in Jewish Hospital ground floor. Enter the hospital via the entrance on Abraham Flexner Way—the Starbucks is located in the lobby—or via the entrance on Chestnut Street and walk straight ahead down the hallway (past the cafeteria and elevators). Take the first hallway to the right and Starbucks is straight ahead.
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Your child should not attend therapy, if she/he has fever or vomiting within the past 24 hours. Please call our Out-Patient Office Coordinator, 502-582-7495 and let her know your child is sick.
[/ale_toggle] [ale_toggle title=”What important information should I share about my child to make Locomotor Training successful?” state=”closed”]- Notify us whenever your child is sick and provide the symptoms
- Notify us if there is skin breakdown on any part of the body
- Notify us if there are any changes in bowel and bladder function
- Notify us if any changes in sensation are observed by you or reported by your child
- Notify us if you notice changes in your child’s sleeping patterns
- Notify us about any changes in motor activity below the spinal cord injury level
Special time will be available for you to observe and ask questions during each session. Weekly meetings will be held to discuss progress and any concerns.
Our goal is to achieve an environment that will keep your child engaged at all times. Distractions will be minimized and discouraged. Please remember that the Ronald McDonald Family Room is available for your use.
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According to the National Heart Lung and Blood Institute (NHLBI) of the National Institutes of Health, “…children are not little adults. But without research in children themselves, we have no choice but to treat them that way.”
There are a number of reasons why research in children is so important as identified by the NHLBI.
- Children’s brains and musculoskeletal systems are developing.
- Medicines, devices, and treatments are often not tested in children.
- To continue to do research in children says to us as a society that children are important, are valued, and that we value their health.
- “We need to continue to do research in children to protect them, to improve outcomes, to enhance quality of life, and to make them ultimately healthier adults,” stated Victoria Pemberton, RNC.
One parent when considering enrolling her child into a research study, said to her child, “We hope that this helps you, but if not, we hope that it can help another young boy or girl.” At a very young age, this parent is teaching her child the meaning of altruism.
For comprehensive information about children and clinical studies, please look here.
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As the parent(s) and advocate for your child, you want to be fully aware of your child’s rights as a participant in research. Please read the rights below and ask us to discuss any questions that you may have.
As a participant in a research study, you have the right:
- To have enough time to decide whether or not to be in the research study and to make that decision without any pressure from the people who are conducting the research.
- To refuse to be in the study at all, and to stop participating at any time after you begin the study.
- To be told what the study is trying to find out, what will happen to you, and what you will be asked to do if you are in the study.
- To be told about the reasonably foreseeable risks of being in the study.
- To be told about the possible benefits of being in the study.
- To be told whether there are any costs associated with being in the study and whether you will be compensated for participating in the study.
- To be told who will have access to information collected about you, and how your confidentiality will be protected.
- To be told whom to contact with questions about the research, about research-related injury, and about your rights as a research subject.
If the study involves treatment or therapy:
- To be told about the other non-research treatment choices you have.
- To be told where treatment is available should you have a research-related injury, and who will pay for research-related treatment.
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This is the way that you as a parent are given details about a study so that you can decide if your child should join the study. You are informed so that you can give your consent or okay. Nothing can happen until you give your consent to it. While there is a form to read, the discussion that you have with the research team is vital. The study team wants you to know about every detail of the study, when and what your child’s involvement will be. Take the time to ask questions, sit down and read the full informed consent document. If you still have questions, make notes to yourself and go back to the research team.
Assent
It has been found that most children from age 7 can understand basic information if given at their level. Therefore, if a child is old enough to understand the study, his or her assent may be required. Assent means “to agree to be in a study”. Often, children are asked if they agree (assent) to be in the study and to sign the assent form. These forms are a simpler version of the consent form that parents sign. Making sure that children have a say is important. However, not all studies require an assent and the age of assent varies by the study.
This information has been published and is available here.
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If you decide not to enroll your child in a study, your child may still receive care through Kosair for Kids Center for Pediatric NeuroRecovery in association with Frazier Rehab Institute. If you feel for any reason, at any time, that you wish your child to be removed from a study, you have the right to do so.
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If you agree to have your child participate in research, the Project Coordinator will assist you and your child in scheduling your child’s participation in the appropriate study. If you have further questions, the Project Coordinator will assist you or refer you to the appropriate resources.
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Here are some suggested ways you can help support us.
[/ale_toggle] [ale_toggle title=”How can I contact you?” state=”closed”]Visit our contact page for several ways to reach us.
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