Data Registry

The mission of the North American Clinical Trials Network (NACTN) for the Treatment of Spinal Cord Injury is to bring promising therapies out of the laboratory and into clinical trials, in a manner that provides evidence of effectiveness and safety.

NACTN aims to examine the natural history of spinal cord injury and advance measures for assessing treatment success. Network collaborations will provide the foundation for a global system that will speed therapeutic development and ensure that powerful new therapies will be made available to those in need.

The NACTN Registry is a repository of standardized, de-identified data collected from patients presenting with a new traumatic spinal cord injury (SCI) at a network of clinical centers. Data collected includes imaging information from CT or MRI scans, neurological and general medical outcome and rehabilitation evaluation.

Learn More about the North American Clinical Trials Network

SCI Bio-repository

The purpose of this study is to create a biorepository which will allow researchers to examine biological substances appearing in the blood, urine, and stool after a spinal cord injury (SCI). Blood, urine, and stool samples will be collected and stored so they can be used to identify biological targets related to functional recovery, medical complications and to help guide future treatment decisions. The research may also involve various types of genetic testing. Genetic testing looks at pieces of DNA called genes. Genes provide the instructions needed to make our bodies work.

The objectives of the biorepository are:

1. To collect biological specimens and correlate with clinical data from participants with acute or chronic SCI and healthy non-disabled (ND) control individuals. The data collected would be age, gender, general injury location (cervical, thoracic, lumbar, or sacral), number of years post-injury, and whether the injury is complete or incomplete.
2. To provide high quality biospecimens to facilitate biomedical research and clinical investigations into a variety of issues related to the recovery of function after SCI.

Translational Cores

Metabolic, Neuromuscular and Skeletal

Bowel, Bladder and Sexual function

Neurophysiology

Cardiovascular and Respiratory

Motor control

Bedside to Bench

Data Registry